Dexters Story – SUB ARTERIAL VENTRICULAR SEPTAL DEFECT

little Dexter, who was born on Fri 29th August 2014, has an unusual heart defect (a doubly committed subarterial ventricular septal defect!) and is currently under the care of both Gt Ormond St hospital and the N&N.  Thankfully the care and support is brilliant, and we couldn’t ask for anymore from them. In time, when he’s big and strong enough, it’s likely that he will have an operation, and will be monitored and supported throughout his life, even after an operation has been done.

Because of the research that they do, I am keen to raise awareness and funds for the British Heart Foundation, so am inviting friends and family to join me on Sun 1st February at midday, at Eaton Park in Norwich. It’s not about how far we walk, or how many laps we do, but how many of you can make it. There will be a nominal entry fee of £5, which you can either give me on the day or pay through my just giving page, and then I will donate the total that we raise. If you can’t make the walk but would like to donate anyway, that would be great. One other condition is that you should wear something in the colour red…. Wear it red day isn’t until Friday 6th but I thought more people could make it on the Sunday.  Everyone is welcome, so round up your babies and buggies, your children, partners and dogs!

Thanks for taking the time to visit my JustGiving page. Dexters story – Just giving

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

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Dexter David Fraser Gow was born at 07.28 on Fri 29th August 2014.

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Despite being exclusively breast fed, Dexter was struggling to gain weight and had dropped centiles (from 75th at birth to the bottom of the chart) We put it down to a combination of his tongue tie which we got corrected, and my delay in milk due to the emergency c section….

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The health visitor referred us back to GP a second time by his 6th week and a heart murmur was discovered. We were at the N&N by the following day where a hole in his heart was discovered. Further referrals were made, and he was seen by Specialist consultants at the N&N and Gt Ormond Streey within weeks…. IMG_4551

By around nine weeks, Dexter had been put on a diet of High calorie formula combined with mummy’s breast milk and slowly started to gain the weight he needed…
By November he had been diagnosed with a doubly committed subarterial ventricular septal defect and it was taken to peer review at Gt Ormond Street as to when they should operate.

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By December his weight has gone up significantly and he is thriving….still on a combination feed but slowly being weaned off the high calorie prescription milk. By end of December he has reached 50th centile.

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We’ve now heard back from Gt Ormond Street – they have made decision to hold off from operating just now and will monitor him closely for any changes or symptoms of failure.
He has his next follow up appts in February and April. We’ve been given the green light to come off the prescription milk and have now reached 16lbs!

So now you know Dexters story please help if you can every penny helps  Just Giving – Dexters story 

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